This Train is Picking Up Speed

Not to get too carried away with a metaphor, but we are certainly heading in a forward direction now and there have been no unexpected detours or stops in recent weeks. Even Jon himself says he is getting better. His blood counts continue to improve (we are just a few numbers away from the platelet count that lets him take a blood thinner), his energy is slowly improving, and he is cooking just about all of our dinners now. Hallelujah! And he hasn't really even noticed that he is not getting any treatments at all for cancer, as there is no measurable cancer at the moment.

There are some unsolved or undiagnosed ailments but they have been acknowledged by the Kaiser doctors and he has more appointments to try to figure out the cause of the pain in his arms and shoulders and back. So many scans.

Even though we don't look back too much, I think the last year was one of the hardest and worst years of Jon's cancer experience, and now it feels like the CAR-T worked. He is still the boniest person, but he is back to eating and he can eat whatever he wants. Chocolate ice cream is once again delicious.

We haven't taken a trip in a long time and the other day he started to daydream about some destination. 

There are a lot of broken golf carts to fix, and that is what he needs to focus on now.

Comments

  1. Lisa KornetskyApril 26, 2026 at 5:06 PM

    This all sounds like great news! I’m so happy that Jon I doing so much better! Love to all❤️

    ReplyDelete

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