Improving
I haven't been to see him myself yet today, but I hear that he is starting to express some angst about all the things he should be doing on the farm. This is good. It has been days since he even thought to pick up his phone, which certainly was an indication of how terrible he was feeling.
The NG tube was put in yesterday and they started feeding him right away, even though they didn't quite have the equipment in place to do it all to code. Rebecca says they manually pumped the formula, which must have been a challenge since the pace of delivery was supposed to be extremely slow and careful. By 10:00 last night, the charge nurse had installed the pump. They still didn't have all the right equipment but they managed to piece everything together and Jon was fed a small dribble of formula all night long. Today they are working on increasing the dosage, as his stomach shows that it can manage this. Things are looking up.
Alissa and Rebecca went in this morning and Anna is taking the middle shift. Last night there were five of us in the room for about an hour, (me and Jon and the three adults who are leading this charge) and none of them thought it was a good idea to take a family picture. A missed opportunity.
Anna says he is sleeping quietly except when mean people come in to poke and squeeze him.
Things feel so much different than they did 24 hours ago. Alissa says that it is likely that the doctors who were reluctant to go to a feeding tube (instead, just saying he should eat) are probably not doctors who often deal with this kind of situation and are not likely to go to an NG tube as a short term solution.. And most patients don't come in requesting a feeding tube; usually they have to be convinced. In this case, Jon was asking for it. He wants to get better and get back home because he knows for sure we are not doing everything exactly right. And he is correct.
Sindee sent your recent blog posts and I'm sending love and good hope your way. Today sounds a lot better than yesterday. I'm holding you in my heart.
ReplyDeleteI’m so glad that Jon had a better day yesterday. Sending all my love to all of you!
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