Still Plugging Along

Most of Jon's physical ailments are now mostly unrelated to his cancer, although I am sure they are all partly caused by the last 17 years of treatments and coping. The thing that is worrying me the most right now is the cough that will not go away. He thinks it is all about his sinuses draining, and maybe it is, but coughing is such a disruptive and tiring thing, night and day. The various medicines he has tried to combat the drainage have not been effective. He has an appointment with his PCP this week and he will he go through the list of things that are still not so great.

As I have said so many times before, all the varieties of pain and discomfort are taking a toll on his mood. However, we also see that he is able to do more every week. He is shopping more, fixing things more, working for Al a little bit more, cooking more, and watching no more TikTok (he decided to go cold turkey).  If he doesn't want to do something (like go to a third seder in a row), he doesn't go. 

Disappointingly, the blood counts are still not great. Some are better (red blood), some are sort of stuck in a low place (platelets), some are worse (neutrophils this week are way down). If any of us had blood that was so wonky, we would undoubtedly feel tired and out of sorts. Because his blood is invisible to the rest of us, it is sometimes hard to remember how exhausting it must be to have such an unreliable power source.

We have had some nice visits with friends and family, and even though it takes energy that Jon doesn't always think he has, he perks up. He can always take a nap afterwards, and he does.

We are all really glad that he is cooking and eating. This is the best news of all.

Comments

  1. AlApril 7, 2026 at 11:17 AM

    I know his old Contel software buddies really enjoyed having lunch with Jon at ParkWay Deli.

    It was great he made the lunch.

    ReplyDelete
  2. Bill SilvaApril 14, 2026 at 3:32 PM

    Just catching up…I lost the blog link (sorry). Glad to get news of Jon and all…lots of ups and downs, and one step forward often followed by a step or two backwards. I’m out here rooting for all of you, for what it’s worth. Sending love and positive thoughts your way.

    ReplyDelete

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