Well, As I Live and Breathe!

Jon had a pretty lousy night last night and I was starting to despair at 4 AM that things were not heading in the right direction. But we got ourselves up and out, took the shuttle to the hospital for an 8:15 appointment. Then they couldn't get the line to work for drawing blood and they had to do the whole thing with the unclogging stuff, so time went by. I went outside to take a walk in the crispy air and by the time I got back Jon said Julie the NP said she was thinking of discharging him tomorrow.

WE CAN GO HOME TOMORROW!

As far as we can tell, nothing is that much better than yesterday, but Julie was finally back after the weekend and she said, why are we keeping him here? He can take the oxygen home with him. Oh thank goodness. That's exactly what we want. 

Now there are all kinds of logistical things to figure out. We are going to rent a car, but Jon has appointments tomorrow, the usual checking of vitals and blood counts and then we finally get to see Dr. Imus for an exit interview.  And then he has a CT scan at 12:45, so our exit will not be swift and smooth. Lugging all this stuff downstairs -- keyboard and oxygen tanks and machines and clothes, etc. -- will be a job since I am the only one doing any lugging right now. There is no doubt in my mind that we will be in rush hour traffic going home. And Jon is all excited about renting an all electric car. We have to keep things as daring as possible (this one better have more than a 50 mile range in cold weather, that's all I have to say).

As we sort of expected, the car repair place got backed up with the storm and they haven't even told us that they have looked at the car yet. Whatever.

When we found out we were going to be set free, we immediately said we can't buy another morsel of food because we have to eat through this eclectic inventory. Of course, Jon is no help there either. He can drink all the Boost. So there. (I used it as a threat the whole time we were here: if he didn't eat something for breakfast/lunch/dinner, he had to drink a Boost. We still have all that we brought because he hates that stuff with a passion after a year of living on it.)

Hallelujah. Tomorrow we will learn what to expect in terms of ongoing CAR-T recovery. We already know that it takes a long time to get rid of RSV. But we will be in our own bed, and we will have our own people all around us... and an oven, and my golf cart, and our own dishes, and vegetables!

I will write another post tomorrow, just to let you know how it all goes, and then you are off the hook from reading about Jon and every other thing.  

Comments

  1. StaceyJanuary 27, 2026 at 4:49 PM

    Hooray!!!

    ReplyDelete
  2. Bill SilvaJanuary 28, 2026 at 8:24 AM

    Wow…what an odyssey indeed. You have been through so much…it is so good that you have each other and so much support from family and friends to help materially and emotionally. Thinking of you all and sending love. Fingers crossed that the journey home goes as planned.

    ReplyDelete

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