Still Slumped On the Couch

In the end, his temperature did not go up and we got to sleep in our own bed all night. That was good. He felt terrible all day yesterday, all night last night, and is still feeling pretty lousy today. But they keep saying that this is what is expected between about Days 7 and 12 (the numbers slide around, depending on who is doing the reassuring) and the CAR-T cells are clearly doing a lot of murderous work. All we know is Jon is tired enough to sleep most of the time and grumble about feeling nauseous the rest of the time. He hasn't eaten since yesterday at lunch, so tonight I said he is not allowed to go to bed after having exactly one can of ginger ale all day. He is grudgingly drinking a smoothie. I am certain he won't finish it.

He doesn't think about it this way, but Rebecca and I do -- I would so much rather be here than at home with these symptoms. We don't want to have to make decisions about what to do, who to call, etc. because the hospitals at home are not specifically equipped to deal with this. We would have to advocate for him every step of the way. While we are here, we are in the hands of people who have seen it all before and who are clear about what should happen next. They are unperturbed. They gave him Zofran and potassium and said, see you tomorrow.

And another thing. I never really knew about the world of take-out until this week. Clearly everyone else knows all about it (including Rebecca). All you have to do is have Jon get on the computer and order and then the food is ready when you walk in and take your dinner away. This is how it works when you can walk places. Where we live, the only place you can walk to is the farm, and all the take-out food is uncooked and usually unwashed.

Anyway, we made it through another day. There was a lot of football to sleep through this weekend. I did a load of laundry and I have one audiobook going, one book on Kindle and one hardcover book -- something for every situation. 

Tomorrow is Day 11. Jon is enduring this, unhappily. I remain hopeful.

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