Day 1

As we understand it, nothing much is supposed to happen on Day 1. Your body is just starting to realize there is new work to do. And the nurse today said there is nothing magical about Day 2 - 7, there is absolutely no way to know when the inflammation will happen (meaning, fevers, usually). She took the opportunity to fidget with Jon's meds a little since she doesn't like the way the Posaconazole interacts with lipitor. She wants to switch out the statin. He has been taking those together forever. These people up here don't like to leave any stones unturned. And she wants to try the Bactrim again even though there is a note from a long time ago saying he got a fever when he took that. She checked with the pharmacy people and they agreed with her that there is only a very small chance that was the reason for the fever, and everyone likes Bactrim best.

In other words, no news. Jon feels good. Tired but not too tired to walk back and forth, and we even walked all the way to the pizza place for lunch (not far at all, but he had the choice to go straight home).

We sat, uncharacteristically, side by side at this desk at our computers, writing and working, looking out at our view which is more interesting, the more you watch all the people coming and going. In real life, we do not share a desk. We are way too messy for that.

Tonight Alissa is coming on the train and she will stay with Jon for 24 hours. I will take the laundry home, go see the granddaughters, and relax my vigilance for a bit. That's kind of a joke but today the nurse told me firmly that I am not to stray further away from him than he can call with his voice.  That sounds so dramatic. I sure hope nothing happens that fast. 

Comments

  1. Chip PlanckJanuary 10, 2026 at 7:48 PM

    Well, one wouldn't choose it, but surely you two are in the Patient Hall of Fame, as are no doubt your many bench players.

    ReplyDelete

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