0.2 Degrees Away

After a whole day of Jon sitting slumped on the couch, feeling ill or sleeping, NOW his temperature starts to rise. It is bouncing between 99.8 and 100.3.  If we see 100.5, then we have to call. Living on the edge. But he has been saying all day that he just feels bad. Non-specific bad. What you usually feel like when you have a fever. Of course he really doesn't want to go in. I already told him that we are not walking this time. He is too limp. So I wish his temperature would either go up or down so we can either go to bed or call in. I let him off the hook for eating dinner tonight and I didn't even make him drink a Boost, since I already had to run for a trashcan when he looked like he was about to throw up.

Even though there is no scientific evidence to confirm this, of course there is the sense that if there is some reaction, then something must be working.  The blood work shows that there is inflammation (could be an infection but no direct evidence of that) which could mean that the CAR-T cells are starting to work. So we can take whatever comfort from that. Jon says it seems like 100.3 is good enough to show that there is activity.

Maybe they will just let him take Tylenol if he calls...

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