Hitting Another Rough Patch

I definitely do not have permission to write this blog, but enough has been going on that it would be hard to catch up if something goes wrong. The problem is, we have no answers so this is just an update, not an actual report of things we know to be true.

We were quietly aiming for the next schedule, which was supposed to start up again next Friday. But we knew better than to announce it because nothing ever goes quite as planned.

Last night one of Jon's ankles got really tender to the touch -- both ankles are already swollen beyond anything I have seen. The oncologist on Thursday prescribed Lasix. First dose was this morning. Jon was worried he had a blood clot since his leg was so hard and sore, but it wasn't particularly red. I wondered if it was a side effect of the recent antibiotic he took for pneumonia.

Rebecca took him to Urgent Care, they didn't find anything obvious, they gave him some crutches and a boot and told him to stay off his foot. He came home and was completely disheartened all day. Didn't get out of his chair except to hobble to the bathroom. Yesterday he had gone shopping, cooked a big dinner, done a lot of laundry. Maybe that was too much. Who can ever know.

He took his temperature and he had a reportable fever, so they went back to Urgent Care and he is in a bed, on oxygen, waiting for results from blood work, etc.

It is so impossible to know what is going on. His recent PET scan was good, nothing new or scary. His platelets are back up where they should be, His red blood cells are returning, slowly. Up until today, he was eating well. Today everything crashed. 

The little girls are aware that he is feeling unwell and they ask about him, hover around him, try to doctor him. They are very aware that there is a medication schedule in this house. Mika has been delivering his pills to him for years. As he got in the car to go back to Kaiser, the girls stood on the porch in their sleep clothes and wished him a good night.

More later. He is super discouraged.

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