Note From Jon

This is Jon. No real news, just a chance to say how much I appreciate all the care and love I am getting though all the people reading and responding to this blog.

Since I got home, things have settled into a routine. Being tethered to the IV line with the nutrition means my range of freedom is pretty much limited to the first floor of our house, and then being driven to Kaiser by Rebecca when necessary. The only other place I go is upstairs to sleep in our bed, which I love because it relieves all pressure on my back, which even hurts some when sitting, and is very noticeable when standing.

But I move around this floor a good deal, doing most things for myself that Rebecca used to do for me. What she has to do is keep the IV happening, 24 hrs/day, into the indefinite future.

I did make dinner the last two nights. Now we have some leftovers so it'll probably be a few days before I cook again.

What happened today was a nurse came by to start me up on the home care system. Since I can get to Kaiser, I don't understand what they are going to do for me. She talked about six weeks of care but I think we can turn it off pretty soon. (She told me three words that I would repeat back to her later -- bed, blue, socks -- and then she forgot to ask me for them so I had to remind her and tell her the words...)

Progress is slow but I am better than when I came home, and certainly better than I was when I went to the hospital.
So, once again, thank you for all the attention and concern that I feel from you. 

Comments

  1. AlOctober 15, 2025 at 11:28 AM

    Very glad you r improving. Fingers crossed.

    ReplyDelete
  2. Laurie LevineOctober 15, 2025 at 4:18 PM

    Bed, blue, socks...I will be repeating those words for the rest of the day. So glad you are progressing, even if baby steps. And I am so impressed with you cooking..it's hard for me to get to on a good day.

    ReplyDelete
  3. KatherineOctober 15, 2025 at 5:13 PM

    So glad to hear you are feeling up to updating us, Jon! Sending warm thoughts!!

    ReplyDelete

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