JON IS HOME

Jon was sent home today, with a lot of medical equipment and bags of TPN. He is happy to be home, very comfortable in the big chair, and delighted to see Mika and Liana who came over for a little dessert. He will be tied to this bag of TPN until someone says he can change the 24 hour schedule. 

Once there was a viable plan for getting some nutrients into him, it seemed like things started to fall into place. In addition, he was probably finally getting the right balance of potassium and phosphorus and whatever else they kept adding to his menu. Today he certainly seems like himself. He is weak and extremely thin, but he is keeping track of everything -- he asked the nurses what they were giving him, and asked questions that were not easily answered.

For the next week or more, there will be people coming to our house to support this TPN process. No one really wants us to touch anything, except to turn it off if something goes wrong. Someone will come to take blood to make sure everything is still going in the right direction, there will be visits from PT and OT.

I am not sure the blog will be very interesting reading, but I know there are a number of you who are counting on these updates. We will see how it all unfolds. We are hopeful. Many thanks to all of you. As I said earlier today, it is powerful to have so many people praying and watching and thinking about us. 

A week ago today, things felt bleak and scary. We are forever grateful to the doctors and nurses and all the others who know how to help bring people back from the edge. The nurses noted that Jon always had family in attendance, watching and asking, and we know that also helped to bring him back from the brink of disaster.

Shechechyanu!

Comments

  1. Lisa KornetskyOctober 10, 2025 at 9:04 PM

    Such wonderful news!

    ReplyDelete
  2. Bill SilvaOctober 10, 2025 at 9:11 PM

    Great news! Keep getting stronger and getting better! Very appreciative of these updates!

    ReplyDelete

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