Day 7: Getting to the Hard Part

Today he seemed pretty good but tonight there are more symptoms that we have been waiting for.  More nausea, a slight fever, general malaise.  It would be good to get through the night without getting up to the magic temperature so we don't have to do anything drastic. This is what zero neutrophils does. In Passover terms, this is the narrow place where things are hard, and we are looking forward to better times.

At his appointment today, he had nothing to report of interest and he didn't need any infusions.  Even just while we were coming back from the IPOP, he was still feeling mostly normal -- we did a timed test of which route between home and clinic was the fastest. Jon walked the outdoor route (at my slow pace) and I walked the indoor route through the garage.  The indoor way was fastest by one minute but I like the outdoor way better. As soon as we got home, he started to feel chilled and weary, and he got into bed for a long nap. 

While things were still good, I walked to the pool this morning (and got a little off the track while I was talking on the phone with Alissa...she finally looked at her own phone to tell me how many blocks I had walked too far north and east. It was a gorgeous day so it was all fine.) and had another great solo swim.

Tonight we attended Shabbat services on the computer, and found that Nell and Nancy and HG were all watching too, probably in their pjs. So we were like little kids in the back of the sanctuary, texting away, singing along. And then at the end of the service we were reminded that it is Tony Newcomb's yartzheit, and we were glad that we were there together, invisibly. 

Shabbat shalom, y'all.


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