No Fever But No Diagnosis Either

10:15 PM     Jon had a quiet day  in the hospital, meeting a series of doctors and Physician's Assistants and nurses and a pharmacist.  They continued to avoid using his central line while they waited for more information. They gave him two more types of antibiotics to try to cover a wider swath of possibilities. They found that he has salmonella, which could explain the poor gut function. Or not.

All in all, he didn't feel that bad. At 6:30 this evening they rolled him downstairs for a chest CT scan, looking for more clues.  He could see the results on his chart but we will need to wait for this to be translated by a professional. Tomorrow they will tell him what they think, but there is something new going on in the lungs. He was on oxygen all day, but they decreased the rate to 1 somethings/something.


Meanwhile I had a good long visit with Ellen in the late morning/early afternoon. She brought some provisions and we sat in our masks and talked for four hours. She made a yummy lunch, which I meant to take a picture of so I could pretend to show a restaurant meal (beautiful PVF spinach, pasture raised pork chop, a bright orange sweet potato from her garden, I think), but I forgot.

Last night Jon noticed that his hair was coming out in chunks. I got him a trashcan and he pulled out all the handfuls that he could, just because there would be hair everywhere pretty soon. Last time we cut his hair before it all fell out, but I think this time we missed that opportunity. He looks kind of patchy in the back.  His baseball cap will be a permanent fixture. 

There is no point in speculating, but it feels like the clock has stopped for a bit. No one has said anything about the transplant for a while. First things first.

This is Jon last night, talking with Rebecca, pre-hair shedding.


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